Deer In Backyard 04/29/15

[pics incl] The deer are hanging out in the backyard this evening.

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Debbie Visits 04/24/15

[pics incl] Debbie came to visit, but since we are mid-construction renovation of the kitchen, Mario was unable to be here. We miss you Mario, here’s a picture of Debbie with Ashley.

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More Mario: [ http://blog.scottsontherocks.com/blog/2015/01/05/mario-visits-010515/ ]

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It’s Really NOT a Swimsuit

Today, I pulled a very funny prank, shame on me. 🙂 I had an elderly (said he was 93) man ask me into the lounge area where he and several customers were waiting. He said “We all would like to know what is a clear bra?” Without hesitation and with a straight face, I told him it was a new kind of girls’ swimsuit. He said “Oh my!” and turned BRIGHT RED, wherein I was compelled to show him pictures… of the clear bra protection film that is installed on the front of a vehicle’s hood/headlights to protect the paint/glass from rock chips.

He laughed so hard, still bright red, said “I do believe in my 93 years, that is the best prank anyone has pulled over on me! If I die laughing, it will be well worth it young lady. I want to shake your hand.” All the other customers were laughing and clapping.

It was a good prank. 🙂

I pulled a similar prank on my dad once… http://blog.scottsontherocks.com/blog/2014/05/19/if-you-are-going-to-die-laughing/

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Welcome: TAZ Brain Clot MRI pix & Nurse Tributes

Lots of requests for that link to those MRI images of my brain. I’ll keep a link here on top for awhile. No, they aren’t gory just look like fancy x-rays.   MRI 0105/16, MRI 03/21/14   and   MRI 10/17/13    Here’s the info from my last appointment (and catch up on WHAT happened 04/08/13).

While I have you, please read two of my nurse tributes:
An Amazing Insight Into ICU Nurses   AND   I Think I Earned a Brownie Point

Please, PLEASE, help me with my endeavor to stay in touch by sending me your email OR (kill two birds…) by signing up!

If you are reading this on your phone/iPad/tablet, etc, every once in a while, use the desktop view and see what you might be missing. 🙂

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MRI/MRV Update 04/23/15

I have NOT seen the actual photos of my MRI/MRV from 04/20/15, I just had the results “read” to me.  The scan of my head and neck shows basically no change.  [The previous scans:  http://blog.scottsontherocks.com/blog/2014/04/01/040114-results-of-mri-032113/ ]  The vein from my neck (left side) to my shoulder opens up midway and does not show any indication of further clot.  Basically, nothing has changed in the images and at this point they do NOT recommend any of the more aggressive alternatives.  So stick with the plan for now, which is just adding aspirin to my regimen.  [If you are taking notes, I take thyroid meds daily (because I don’t have a thyroid), I take Xarelto daily (because I was a Cumadin failure; Xarelto is a type of anti-coagulant… blood thinner), I take Amitriptyline daily (it was originally developed as an anti-depressant but had the “side-effect” in low dosages, of helping people with head injuries to manage the pain a bit during sleep.

Aside from this doctor prescribed aspirin (NSAID), I can NOT take NSAID type medications such as ibuprofen, so the only OTC pain meds I can take is acetaminophen (Tylenol).  While I always “try this first,” this rarely helps if my brain clot is in a mood and causing me severe pain.  I usually take a hot shower and this often helps.  I have been crazy enough to try cold shower and that was a bad idea.  My “brain clot” is VERY sensitive to cold 😉   So if the pain is still too much after Tylenol and a hot shower, I have some oxycodone.  I hate taking it, and usually if I get to this point, I break it in half and start with that.  Sometimes I need the other half but usually, just the half brings the pain back down to a tolerable level.  Up until 2-3 weeks ago, I had not taken even Tylenol in several weeks!

Sometimes, I will wake up and realize that the pain in my head is what awakened me.  🙁  I do have something called Lorazepam to help me stay asleep.  I very rarely take this (in the beginning, I needed it more often).  I often try hot tea or warm milk if the pain is not making me cry, and often that will help me break up the cycle of “being awake” during the pain.  Sleep is definitely a factor in how my head feels.  Regardless of the reason I am awakened, if I do not get at least 5 hours of restful sleep, my head hurts exponentially worse the next day.  Once I reach about 5 days, I’m a wreck.  So my goal is to monitor my sleep and take as few drugs as possible to attain that 5hr goal.

For the past several months, I have had many more GOOD days/nights, than bad.  I really thought I had a system figured out but the past 2-3 weeks kinda threw me and it’s been steps backward.

However, in the LARGE PICTURE, I can see that overall, I have improved immensely.  (for example, it only took me about an hour to type this 😉 ).  I think I will just have to take a few days to micro-manage this current pain scenario.  We are adding aspirin daily, but I won’t know if that is helpful for 2-3 weeks.  I will keep ya posted.

As soon as I get a chance to actually SEE the images from the MRI/MRV, I’ll post some updates.

Thanks for all the well wishes, they are greatly appreciated!  And yes, feel free to offer me any advise!

Please, PLEASE, help me with my endeavor to stay in touch by sending me your email to add and/or signing up!

While I have you, please read two of my nurse tributes:
http://blog.scottsontherocks.com/blog/2013/04/25/an-amazing-insight-into-icu-nurses/ and http://blog.scottsontherocks.com/blog/2013/04/25/i-think-i-earned-a-brownie-point/

What happened 04/08/13: http://blog.scottsontherocks.com/blog/2014/04/08/a-year-ago/ and
http://blog.scottsontherocks.com/blog/2014/04/08/a-year-ago-and-surgery-2/

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Ashley: Graduate with Honors

[pics incl] Ashley txt’d me a photo today, of her Academic Honor certificate. Very Proud Parents!

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Lots of Doctor’s Appointments

[pics incl]  This is the short version… I haven’t written the long version YET but I will, it’s just too much to do right now.  I’m combining lots of info and I should have results on 04/23/15.  I have had MANY different doctor appointments and Jeff and/or Ashley have attended them with me.  [UPDATE:  I posted the results here:  http://blog.scottsontherocks.com/blog/2015/04/23/mrimrv-update-042315/ ]

I’ve had a couple of ultrasounds and the ovarian cyst has resolved itself and hopefully that is the last we will hear of that!  There is a long story that goes with this and some of you may have heard parts of it, but suffice it to say that I have seen the specialist and he feels like this is not an ongoing concern.  http://blog.scottsontherocks.com/blog/2015/04/09/successful-blooddraw-040915/

On Monday, 04/20/15 9:00am, I saw the neurologist.  Jeff and Ashley attended this appointment with me.  My head has definitely been hurting significantly worse the past couple of weeks, enough that prompted me to call all the doctors and make appointments.  Jeff and Ashley were trying to get me to go to the ER but I didn’t… and the neuro doc thinks I probably should have too.  He decided to have another MRI scheduled for this week.  We are also going to try adding aspirin again to see if that will help with the bloodflow swelling in my neck.  As a datapoint, I saw my neurologist at the hospital near our house.

On Monday 04/20/15 2:00pm, I saw the hematologist and Jeff and Ashley also attended this appointment.  (by this time, we had given up on the all the other cars and the problems with the house and Jeff just took the rest of the day off– http://blog.scottsontherocks.com/blog/2015/04/20/my-car-has-a-flat-tire/) As a datapoint, this doctor is at the other hospital where I had the brain clot surgery.  This doctor is difficult to explain, he is such a genius in his field, that it is difficult for him to “talk down” to those of us whom have successfully avoided biology since freshman year in high school 😉  Ashley loved him.  He decided that he didn’t want the MRI “this week,” he wanted it “right now.”  He actually kinda scared me!  After many frustrating and ridiculous phone calls between the doctor and the MRI place, then Jeff and the MRI place, etc… they finally scheduled me immediately… back down at the first hospital by our house 😉

What should have taken 45-60 minutes, ended up taking many hours.  They were unable to get the IV in my arm for the MRV part of the MRI… IT TOOK THEM HOURS!  You name it, we tried it, including the ultrasound device, which missed twice.  Finally, on the 6th attempt, I was ready to have the MRI, almost two hours after arriving.

I’m sure by now, all the doctors have received copies of the MRI/MRV and hopefully talked with each other (maybe not).  I will call them tomorrow and see if there is any change in the plan.  The plan right now is to just add aspirin and go from there.  I’m not really keen on the other possible solutions because they involve more invasive procedures and/or surgeries.  I’m hoping between the drugs and blood thinners that I can get some sleep and improve.  I will certainly keep everyone posted on everything.  Thanks for all the phone calls, it’s been nice catching up with you.

Yes, this was 3 attempts in my hand, and 3 attempts in my arm.  Finally, success in my arm at last!

For your amusement, I have included a photo of the WiFi options that popped up at one of the hospitals…. VERY FUNNY!

More Hematology Stuff: http://blog.scottsontherocks.com/blog/2014/03/13/neoro-appt-031314/

One Year Ago:  http://blog.scottsontherocks.com/blog/2014/04/22/blueberry-muffins/

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My Car Has a Flat Tire

[pics incl]  Today, is one of “those days”… Murphy has moved in and set up camp (as in Murphy’s Law).  My car has a flat tire.  So, I was going to take Jeff’s car into Denver and he was going to drive the suburban to work…. until the suburban decided not to start.  I blame John, his truck started all of this! 😉   It’s been a comedy of errors type of day (see the next post too).  Needless to say, it’s been a long hectic day but the “tire guy” came to our rescue and it’s all better now!  I highly recommend this service!  [http://blog.scottsontherocks.com/blog/2015/03/21/getting-new-tires-part-2/]

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Missing Dalton

Today, listening to Ashley talk about her prom and after-prom events, I realized how difficult this weekend must be for our friends Roni and John Lambrecht ( http://blog.scottsontherocks.com/blog/2014/12/29/in-memory-of-dalton/)

Dalton would have attended this prom as a junior in high school, whether he wanted to attend or not.  Ashley would have dragged him if he didn’t have a date 😉 but he would have had a date!  How difficult it must be for them to pass these times in OUR lives and not have the experience of the moment for themselves, but the absence and the reminders.

Some people say the darndest things!  I have had people ask me the strangest questions and it makes me wonder if “people” ask John and Roni these same types of questions??

I certainly do not begin to compare my “missing Dalton” to the heartache they feel for the hole in their hearts, in their lives.  But we MISS him.

A few months ago, I made a post about this:  http://blog.scottsontherocks.com/blog/2014/10/03/how-to-help-friends-grieve/

I have had people ask me if I think they would feel better if he had been younger (not around as long), or older (had more of life’s experiences)?  I cannot imagine thinking that a parent of a smaller child, would miss that child less? or that parents of a young adult think their child “lived more” than a teenager?  I cannot fathom the loss of a child AT ANY AGE.

I have had people ask me if I think they wished this had happened to a family with multiple children.  I’m presuming because they think having “other kids” makes the loss of one bearable?  Of course, my first reaction to Dalton’s death, was, why?  Why an only child?  Why this child?  I’ve never asked them if they felt this way.  But, I can imagine that every possible permutation of what happened, has crossed their minds… it has crossed mine.  That being said, I think it’s only natural to “wonder” at the loss of an only child but I fullheartedly believe that they would never wish the death of a child, any child. I don’t think they wish this had happened to someone else, I just think they wish it had never happened!

I have had people ask me, if I would have traded one of my children for Dalton.  Absolutely not.  And I know John and Roni would not accept any other answer.  I would however, have given myself in Dalton’s place without hesitation.  I also believe that my kids would understand that choice and be perfectly ok with that decision, sad, but ok.  I also know that our “neighborhood family” would be here for them, as they are now.

I have had people ask me if I “feel bad” because I’m happy about the things I get to with my kids.  And I answer, “No.”  I do not feel bad.  John and Roni do not hold it against my children for living, they love my kids as their own.  My heart aches for that missing piece, but that does not mean that we cannot be joyful.  I have no doubt that it breaks their hearts with happy tears, crossing those milestones with our family.  I have no doubt that there are times that they would rather stay home than live through the “happiness” that we get to experience, but because of their love for our family, they share their tears with us.  When they can, they come to our celebrations, and we know we share Dalton’s memory in those times.  I wish that I could ease their pain and sorrow but I know they do not wish us to be unhappy.  Dalton would not have wanted that, his loving and giving personality wins out!

I have had people ask me if I “stop talking about kids’ stuff” around them.  The reasons have been “because it’s a painful reminder that he is not here.”  No, why would I?  I have kids and while Dalton is not here with us this moment, he is!  He IS their child.  They are not childless, he is still very much a part of our lives.  There is absolutely nothing I can say that IS NOT a reminder of Dalton.  EVERYTHING is a reminder of Dalton.  They don’t need anyone to point out reminders, nor hide reminders… I cannot imagine that there is a second in the day that is not about their child.  To stop talking about children around them, in my opinion, would be cruel.  It would make an empty space in our conversations and that feels hurtful to me.  I talk about school and Dalton, and I will cry, and keep talking about school and Dalton.

I’m making a lot of assumptions here, but John and Roni are our family.  I can make assumptions about “family.”  My advise to people is this… TALK TO YOUR LOVED ONES ABOUT LOSS.  If you are missing an angel, I promise you, that someone needs to know that.  Someone needs to hear you say that, to feel that.  If you have a question, ask.  Some of the questions asked to me are not “wrong.” they are legitimate questions, from real humans.  I wish and hope that people talk to Roni and John about these questions. Maybe I should take my own advise and go ask them myself?!

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Ashley’s Senior Prom 04/18/15

[pics incl]  One of the guy’s family had a photographer friend and Ashley actually got me the photos this time! (we won’t discuss winter formal……).  This is her group of friends that all went together.

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Ashley and MacKenna before Prom

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A LOT of Snow 04/17/15

[pics incl] It’s beautiful but it’s dark, sorry 😉 It’s 2:45am. There was just a few inches yesterday morning: http://blog.scottsontherocks.com/blog/2015/04/16/snow-041615/ At 7:45am, we have 90min delayed school and it’s still snowing. At 5:30pm, I was trying to take a picture of the mostly melted snow, when suddenly, a snowball fight appeared. I couldn’t have planned that better if I tried!

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Popcorn

[pics incl] Popcorn in the cat condo.

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More Popcorn:  http://blog.scottsontherocks.com/blog/2015/03/21/ashley-and-popcorn/

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Snow 04/16/15

[pics incl] Some snow this morning.

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Weather in Beijing

[pics incl] Courtney seems to think there is more than smog in Beijing.

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Apparently, this is what it really looks like:

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Interesting Moth

[pics incl] I’m pretty sure this is a moth. It was outside the car wash this morning.

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