Ode to the Mailbox

[pics incl] Our mailbox died last night.  While I was researching this untimely death, the truth was quickly discovered, this was not a hit-n-run

  • Me: was the mailbox down when ya’ll left or did “we” do that?
  • GuiltyParty: I did it last night. Totally ran over the mailbox 
  • Me: We’ll schedule a memorial 
  • GuiltyParty : Kay, I’ll bring it envelopes shaped like roses 

Dear mailbox we debated whether to bring you into our family.  It was a big deal at the time because we have a postal box and we’d become a “mixed” family πŸ˜‰  We often forget to check if there is any mail in there… and apparently we forget to check to see if you are there.  Oops.

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Favorite Fuzzy Head

I was playing w/ Josh’s fuzzy baby hair and he said it felt relaxing so… the more the merrier. Threatening him w/ posting on FB just encouraged him to grin… so HERE IT IS AS PROMISED those other hands are William’s and Grandma’s 

Josh has decided not continue with the study.  Circumstances have changed.  Now our joys come from seeing this grin while we play with his sweet little baby hairs and we LOVE these sweet little baby hairs πŸ™‚

http://blog.scottsontherocks.com/blog/2017/02/13/josh-is-not-doing-the-study/

Grandma Carolyn was all comfy on the couch next to Josh but I needed a hand for the photo so Will told her we needed more hands. she said she couldn’t reach so I just gave her a look and “well…. lean” Josh was pretending to sleep and William “proved this” by pointing out that “you cannot grin when you are sleeping Josh”… It was a VERY long drawn out proof : You can frown, scowl, gape, etc (all demonstrated of course)

but in the end he was right and THAT is how this photo is on FB

We’ll try to coordinate the mealtrain for them soon so keep checking back.  

it’ll busy on the corner of 3td & Bev

  1. Some of the Hetherington family will be over at the Lambrecht house
  2.  Alexis Van Wagner (former Buddhist temple house) is due w/ baby #2 ANY DAY!  They have a 4yo girl
  3. Kromka’s (2doors from us) are the grandparents/great-grandparents!
  4. We–the Scotts will be at any of those houses visiting/offering assistance

some humor to go w/ this fuzzy baby hair:  http://blog.scottsontherocks.com/blog/2017/02/04/josh-and-will-at-robotics-020417-and-some-humor/

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Neuro 02/15/17

Yes, another neuro, this is the neuro from http://blog.scottsontherocks.com/blog/2016/11/07/another-neuro-appointment-110716/ that everyone just LOVED.  She’s the one that referred me all over the place… the right places.  After speaking with her today, she agreed that she did indeed refer me to all the right places, the Vascular Neuro is my hero, the PT was a good idea, and everyone, including vascular neuro thinks I need to keep going there, i get the results of the neuro-psych next week.

soooo, this neuro doc…. was like… I think you “graduated” from my class, you don’t really need to keep seeing me anymore, UNLESS, someone feels like you should.  she printed out all my notes from me sessions and released me.

the neuro-vascular doc will become my primary care neurologist [http://blog.scottsontherocks.com/blog/2017/02/14/neuro-vascular-021417/]

actually, she answered a lot of our questions (Jeff’s) She is AWESOME.  She KNOWS her stuff and if she doesn’t… she definitely KNOWS where to send you.  If you ever need a referral, lemme know!  I’d recommend this entire office (I was actually recommended to someone else in this office AND I love the staff! and you KNOW… I’m picky about staff!)

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Valentine’s Humor 02/14/17

[pics incl] No, we didn’t do anything. So Jeff proposed to another woman.  I gave my blessing.

William had Robotics, which Jeff “coaches” (mentors), I had multiple appointments and he took off mid-day for my neurologist.  So, nothing fancy, that’s how it is πŸ™‚  THIS IS MY GIFT AND I LOVE IT… ENJOY 

We were texting each other at THE EXACTLY SAME TIME, it was funny πŸ˜‰ 


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Neuro Vascular 02/14/17

Today was the follow up from the MRI done in 12/31/16.  Basically, no change from the last MRI (I’m working on getting electronic images).  We dicscussed medications and he liked that the left arm getting cold thing is for the most part better, so he wants to try and extended release of that  medication so I don’t have to try to take it several times a day (it’s kinda a pain to remember)

The other medication I’m talking , Acetazolamide, seems to help wehnt I’m upright and I feel like I can get more done but man if I bend down… NOT a good thj and then I’m donr, … well, he’s not so sure that’s the best choice but he does’t want to change it right now.  The goal overall, still being to get me OFF many of these meds (in the end).  But right now, only changing the extended release.

stay on Xarelto and “he will call my hematologist” OMYGOSH I think my hematologist may faint

the “new eye Doc” that only has the fancy machine for my field of vision study, but their office doesn’t know how to send a fax… STILL has not shared records w/ any of my docs…. sigh.

And… why again am I taking some of these again??? Pain, sleep…. blah, blah…. too many  cooks in kitchen… NOT seeing “her” anymore…

he said… did you ever try just plain BENADRYL to sleep? “we” will deal w/ the pain… but dude… sleep…. take benadryl… take as much as you want. you really can’t OD. but hey, please start w/ just one πŸ˜‰

me: “will you marry me?” (ok, not really, see a different post today and you’ll get the joke because I am finishing this draft AFTER I posted the Valentine’s humor one HAHAHA!)

We aren’t changing any other meds… yet.  Had some discussions on some of the other migraine plans in place… because that is what I am, a walking migraine.  Hopefully, I will remember to write that down here, but Jeff took notes.  Imitrix, or Fioricet, or the Benedryl/aspirin/phengran cocktail

definitely keep doing PT!
So back to me bein’ a migran.  IF I knew how what when… I’da already had this figured out…..

Several weeks ago Someone suggested I download a migraine app on my phone.  IT tracks weather and kinda-sorta predicts when MIGHT need To be taking that Imitrix.  I’ve just hit the part where it starts making true suggestions (ie: MSG, Wine, water, chocolate, there are like 15-20) you spend 4-6 weeks on ONE thing 

Doc seemed to think this app might be a good idea (it’s abt $10/mo)

Imitrix…. & the sound sensitivity… that’s “a thing” and in reality it’s actually always been a thing. not a bad thing. I have “strange hearing” I can hear in a range others cannot. http://blog.scottsontherocks.com/blog/2011/01/15/william-hears-a-noise/

 So I asked him if this was something that I could have always has but now… it’s been magnified? and YES.  Imitrix is one of those “kinda have to know to take it BEFORE you have a migraine ” so if the app can give me a heads up OR I’m suddenly hyper-sensitive to sound in a “You’re pissing me off” sort of way πŸ˜‰ I should take the Imitrix 

he also agreed that I’m too old to be that sick πŸ˜‰ no actually, the concerns are more about dizziness & other “fun things” that go w/ nausea… I’m just gonna play the old age card because no one can SEE my brain clot card πŸ˜‰ ooooh WAIT  I’m gonna have Ashley design me a tattoo (don’t get me wrong, this tattoo will never come anywhere near MY body… I just want it for my “brain clot card”….mentioned above) πŸ™‚

I’ve also been BEGGING to get off amitriptyline… that’s the one I can’t be in the sun.  it’s not like I tan, I mean, I get sunburned just talkin’ about gettin’ sunburnt but it’s been a REALLY long time since I’ve seen sunlight w/ out fainting.  I don’t remember which neighbors caught me before I fell in the campfire….

Doc said amitriptyline can be next on the list.
 

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PT 02/14/17

Spent PT today, trying to recover from PT last week πŸ˜‰ and from being sick over the weekend.  Let’s just say, I’m too old to be that sick and the cats agree.  I was pretty concerned about whether Josh had been exposed to that but they said if he had it, he got over it a lot faster than I did?!?!

My neck and shoulder swell up last week like a little baby turtle… hasn’t done that in a while. http://blog.scottsontherocks.com/blog/2016/07/13/neurology-appointment-07132016/ And then whith me being sick on top of that, I haven’t had an oppurtonity to work it all out myself.  Guess that’s whet the PT people at there to ehlp me tther for.

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Josh is NOT Doing the Study

Josh will NOT be going into the study I mentioned last week.  Joshua has decided not to proceed.  Here are Debbie’s words:  http://team-josh.com/index.php/2017/02/13/feb-13/  Please surround everyone with your thoughts and prayers.

Many of you have been asking how you can help.  We will be sending out a link for a mealtrain and Debbie will put up the days she would like food.

Many of you have asked how you can contribute if you don’t live local (so that you can help fly in their family from NZ)
They do have a GoFundMe page already established:  https://www.gofundme.com/team-josh

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Lazy Cats 02/11/17

[pics incl] The cats are playing nurse maid in the form of hanging upside down on my bed?  At first I thought it was just me, so I walked around and took a photo from another angle.  No, he’s upside-down.


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Lunch with Monina

[pics incl]  I walked in one morning and one of my girls was Monina πŸ˜‰


After chatting, we needed food!

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PT 02/07/14

Well, there were pros and cons.  We figured out what NOT to do and my hand promptly obliged by showing them how it gets cold and numb and tingly when it should NOT do that!  And really all we were doing was rotating my arm up over my head while I was lying down… but NOOOO, that was definitely a bad idea.  Managed to work that out a bit before leaving.

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with Josh and Debbie at Children’s 02/06/17

[pics incl]  Josh must’ve decided I was “crazy enough to do it” and asked me to hang out with them at Children’s Hospital today, of course [to both]!  It was very interesting to meet the doctors involved in his new study [starts Monday] and everyone at Children’s is exceptional!

I’m convinced Debbie and Courtney schemed to set me up with “their perfect movie” soul mate?!?  I just told them each they “love each other” πŸ˜‰

I need to do some “proper” introductions with some of our neighbors, but just “off the top of my head” “Dear Laurie McLain… Debbie likes to knit…” OH, there’s cooking, baking, she’s an author, lots of other things, MANY of things my neighbors do, the list is long & glorious… [things she does, my list of glorious neighbors, things my neighbors do, all the above]

I give up ;-P

Courtney also came running in the other day and decided that she can take Josh to the Chinese market (and to my delight… NOT ME), she calls this place the “push-n-shove”… turns out he loves this place and he’s now decided that he’s “gonna have a personal chauffeur” HA! They plan to go tomorrow!

Josh had another MRI today and Debbie has been keeping his website as current as possible w/ all that’s been happening:  http://team-josh.com/

PLEASE, take a moment to let them know stopped by!

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Josh and Will at Robotics 02/04/17 and some Humor

[pics incl] The STEM FRC robotics team was prepared to give Josh a tour.


They laser created this sculpture for him.



They have a fabrication “lab” and each of their robotics teams at the school, fabricats, parts etc.  [NOTE:  Josh also got to ask questions of team members that were dual-participants.  One team was building a submarine unit.]

At one point during his robotics software demonstration, another mom came in and casually pointed toward the poys and asked “OH, is he your son?”  


I thought she was pointing to Josh (and assumed since he’d clearly never been to Robotics) “OH, no, that is Josh, William is mine.”  She gave me the most confused and puzzled look… and trust me… I know the look… I’M THE ONE USUALLY GIVING THE LOOK.  “OH, he sometimes goes by Will” just made the look worse πŸ˜‰  She pointed to Jeff and as if learning a new language said “Jeff?” and as I said yes she was clearly in “The Twilight Zone” “…the boy in the orange cap?” “yes, William. He sometimes goes by Will?” “the boy in the orange, I have lots of pictures of him with his father, Jeff” “Yes, Jeff is my husband” “the boy in the orange?” “ya know, you don’t know me, usually it’s me confusing people but I really feel like maybe I didn’t start this one? yes, I think?? the boy in orange is my son William? or Will, & that’s my husband Jeff? now I’m questioning me? The other boy is Josh” I said, let’s just stick to something I think I do know. she’s laughing and says something about BBQ & Jeff and “well, now I know I’m in the right place.”

NOW, all the boys are all “over there” and she starts telling me about her daughter and her funny last name and how funny it is to grow up with “funny last names…..” this starts MULTIPLE conversations

1) Jeff walks up and… “Hey, did you know that William can’t go by William, or even Will, or Walter at Robotics?”  [ah… talking to me…] “NO,NO, I did not or maybe do not remember that.”  “Funny story… There are several Will’s and William’s and…” so see the other boys with Josh & Will? One is William and the other is Walt.  so her confusion was genuine over “me thinking I am William’s mom” and MY William is “Scotty” at Robotics [and I “hear” that grin]

2) Jeff proceeds into his “I have three first names” instead of a last name and William “ditto” says he doesn’t mind going by “Scotty”  But this mom is mildly lamenting but jokingly about her last name.  But I say I doubt she has me beat, she doubts I have her beat… 

Josh decides he is going to “judge” and she asks why “because my last name “sounds formal”  OK… we all agree, he’s actually got us there.  “Hetherington”  He wants to know hers “Fast”   Ooooh, so close, but he declares that I win.  “Wait, what’s yours?”  I’m so proud of Josh, half-giggle/smirk/snort, says “Bacon.” [http://blog.scottsontherocks.com/blog/2010/11/05/whats-in-a-nickname/]

3)  Somewhere in here she is still talking about BBQ.  Jeff bought this from a smokehouse but was talking about needing a new smoker.  At some point, most everyone walked ahead, but we 3 were slow, I said he was training William… (I’ll never catch on to this Scotty business)  and without blinking she just nonchalantly “OH does Jeff do all the cooking then?”  Josh… does his little half giggle “I’m not laughing” smirk  I faked a protest and told the truth πŸ˜‰ http://blog.scottsontherocks.com/blog/2016/08/19/toast-its-not-for-dinner/

Later, someone asked Josh if he learned anything new, he said something along the lines of “no, it’s too much.”  honestly, I totally got it.  I asked the man if he’d give me a minute to translate.  Josh & I spoke that it was all such, sights, sounds, people, movement, explaining, that it was hard to LEARN.  not bad just “much”  he did ask questions of the submarine kids, but they were “few” and quieter.  

So, I teased him that he was getting “fuzzy baby hair” and I was playing with his hair and said he has more now than Courtney did when she was a year old.  He did his little half-giggle thing.  We agreed that we DID learn, just maybe differently.  the GREAT thing is that no matter what, all the kids want EVERYONE to get something.  I was impressed to see each of the FRC, TSA, Best, etc teams working together and articulating their goals.  So the man was glad to hear “our ‘new’ answer”

… on the drive home…

We keep telling Josh that we will treat him “like one of our kids” and he has learned to treat me “like one of my kkids would treat me.”  Remember how I sometimes have trouble spelling?  “The other day when you were txt’ing me, you weren’t making any sense, I was about to tell you to ‘go take a nap’ [I don’t remember what he actually said, we were all laughing too hard]  Mum says I have to be nice…” Rolling laughter… Jeff and William are egging him on… actually at this point I am too.  Forget the little half-giggle thing, he’s being actively ENCOURAGED to commit insubordination! and being given TIPS! [sorry Debbie]

Continuing along the drive, Josh is now talking about how great our neighborhood is [now his neighborhood], every home unique, yards are bigger, everyone seems so friendly even if they don’t live on your street  (we are all “clearly you haven’t met all the neighbors”) and “I moved two door down from my friend.”  I abruptly spun around and over-dramatically “did you hear? he called ME, HIS friend!” William started to protest and I just pointed at William with “the point” only a mother can point at her son ;-P, Josh “half-giggle” but “now what?” (just shrug and nod and give in to her William… they both smirked)…and…the firestation is close by and really quick. [NOTE: he told us his version this day http://blog.scottsontherocks.com/blog/2017/01/15/the-next-generation-of-pinochle-players/]

 “OH we know ALL about them… and Jeff talks about “the circular saw” and HIS finger he about sawed off” he was showing the scar to Josh… as we were pulling into Josh’s drive Tony has his back to us in the driveway, normally this would have prompted “loud horn honking” but the circular saw in his hand saved him…

…then he set it down, William and I are totally hollering at Jeff to “Honk the Horn!!!” Josh is quickly catching on πŸ˜‰  Jeff “It’s not neighborly”, in unison “what neighborhood do you live in?!?”  Something about Rod & Lisa… to which I replied “…given the right circumstances, ‘drunken’ Rod would’ve taught Tony not to wear those sweat pants next door to Rod!!”

sigh… no horns were honked.. but Josh learned a LOT about who WILL honk at you when your back is turned (some of our neighbors have those EVIL silent hybrid cars…), the neighborhood list is long, but distinguished … there was giggling.

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Remembering Lou FlatlandΒ 

Our dear sweet neighbor and friend, Lou Flatland, passed away this week.  Many current neighbors gathered to be met by friends and family and former neighbors.  It was great to see everyone and celebrate such a wonderful life!

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Josh’s Latest MRI

[links to pics incl]  As promised, here is link to Josh’s MRI http://team-josh.com/index.php/2017/01/16/1-16-2017/ & https://www.gofundme.com/team-josh  is the link where you can help him fund his “experiences”

right now he’s finishing touches on a souped up gaming computer & talked mum & dad into matching family tattoos πŸ˜‰

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C. Bananas w/ Chopsticks

Yah, go ahead, TRY & judge me.  πŸ™‚ HA!  I had more Neuro-pysch test [http://blog.scottsontherocks.com/blog/2017/01/18/neuropsych-testing-011817/] today, so let me start at the beginning, a very good place to start (“Mary Poppins”).

[bare w/ me, took me long time type it all up & sppellcheck just irritated me.  hope it comes across… sigh, I miss my brai/thesaurus]

We were a bit late so I grabbed William breakfast this morning, originally it was yogurt and a Bolthouse drink (chocolate protein drink) but he swapped yogurt for a banana… I still had the spoon in the paper towel.  I laughed but then got a straight face & told Aden “we eat our bananas w/ a spoon.”  He already knew we were crazy…

This afternoon at neuro-psych test… we were doing some questions designed to test cognition (from stroke).

One of the questions was: do you eat a banana with A: hands B: Spoon c: Chopsticks D: Knife (and, NO, I don’t remember if that’s the exact order, just go w/ me here πŸ˜‰ ) ….. OH MY GOSH ARE YOU SERIOUS?!?!  (what are the odds?!?!) I couldn’t stop laughing.  I told her that this morning I gave Will a spoon for his banana but that I’m pretty sure all three of them would answer “C. Chopsticks”  just because chopsticks is a choice! [NOTE: and for the record, I’m gonna blame their “other father” Kevin http://blog.scottsontherocks.com/blog/2016/06/26/ashleys-common-law-father/]

She actually has said on more than one occasion that my “cultural heritage” (or some crazy word like that) may require her to drag my entire family in for testing… or straight jackets.

[NOTE: The following morning, Aden was discussing “army type” boots but they are expensive when NEW so I mentioned that the Army Surplus is near where I’ve been taking these crazy neuro-psych tests and also not far from the school [NOTE: Have we previously  mentioned that their school is NOT near where we live?]  “If YOU remind me, we can plan to go over there after robotics.  But YOU… HAVE… TO… REMIND… ME.”   He was glad to hear that and then said “You might think this is weird but… I’d like to find boots at the Army Surplus.”

OK, stop a moment here. Please imagine ANY SITCOM….  EVER, doesn’t matter which…. old, new, cartoon, foreign, doesn’t matter.  We are stopped at a red light, William and I looked at each other, looked into the backseat at Aden, looked back at each other again, and I said in… a… non-laughing voice as possible “Aden,……… last night… when I picked ya’ll up from robotics, I had a blog ready… for Will to read… about eating bananas with spoons… or chopsticks….”

Wait for it…. Wait for it… still waiting… There it is…

“You’re right, I’d like to retract my previous statement.”

in his defense, Aden is a truly BRILLIANT young man (I’ve actually known this one since he was little πŸ˜‰ )!  Aden’s alarm did NOT go off this morning and his shoes weren’t even on his feet yet, hence the boot conversation πŸ˜‰ BUT, solely based on his comment above, if he thinks he is the weird one in HIS family and he goes back home and tells THIS banana story (actually mom gets the blog πŸ˜‰ ) we may no longer be carpooling.  WE WILL CORRUPT THAT BOY YET!]

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